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Our Mission Statement

Run4NF is a national fundraising organization whose mission is to create a team of people who through personal challenges will boost NF public awareness as they fundraise for NF. Run4NF welcomes all willing to make a difference regardless of their athletic abilities. No matter how long it takes to finish a challenge Run4Nfers are all winners for taking their first step across the start line.

Welcome to Run4NF.org

Hello friends~
 
Welcome to Run4NF homepage. 
 
Spring is almost upon us!
 
A time of year full of promise.  We can sense the change in the smell of the air.  We can hear the birds in the early hours.  The snow almost gone.  Rivers rising.  New life waiting to burst forth from under the cold winter ground.
 
I can feel these things for Run4NF too.  Through the cold winter months I have trained hard to run in some new cities.  Meet people I have only chatted with on my email.  I feel the ripple effect of our desire to spread awareness growing in size.  I am confident with our constant efforts that NF will become a household name.  This month when I returned to D.C. to lobby for research dollars for NF, once bewildered looks have been replaced by warm embraces and promises. Promises of continued funding. 
 
Last weekend I heard Dr. Cornelius speak about a new and promising treatment for plexiform tumors. With potential results we could have never dreamt of a decade ago.
 
 It is spring.  Full of promise.  Promises of awareness.  Promises of research.  Promises of a cure.  Promises of hope.
 
Email me debbi@run4nf.org and join us.  Walk, run, bike, swim, sideline crew, or create a new event.
 
Keep running.  Training smart and be safe.
As always, warm wishes
Deb Hanlon

Featured Profile: Paul

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Paul was diagnosed with NF at age 18 months, and had his first major surgery – a craniotomy -- at 2-1/2.  The plastic surgeon removed as much of the tumor as he could, although a portion of the tumor remains inoperable.  Then, the plastic surgeon and a neurosurgeon used a piece of his skull bone to repair the holes in his skull made by both the tumor and by an NF-related process that erodes bone, and to shim up his right eye, which had been pushed downward by the invasive tumor.

Paul has since had six more surgeries to correct the drooping eyelid that resulted from the stretching that the tumor did to the internal structures.  Amazingly, throughout all of this, he has maintained a sweet, sunny, and generous disposi

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Upcoming Events


April 2008

St Louis RacesClick here to Run4NF

May 2008

Flying Pig MarathonClick here to Run4NF

River Bank Run in Grand RapidsClick here to Run4NF

Buffalo MarathonClick here to Run4NF

June 2008

San Diego MarathonClick here to Run4NF

July 2008

NJ Triathlon Olympic or SprintClick here to Run4NF

October 2008

Detroit Free Press StarClick here to Run4NF

Waddell and Reed Kansas City MarathonClick here to Run4NF

January 2009

Houston MarathonClick here to Run4NF